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Professional
Reviews: |
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From
the Library Journal, January 2005, p. 67:
Recommended
by U.S., British, and Australian narcolepsy organizations, this self-published
book is one of the few titles available on this disorder. The author,
who has suffered from narcolepsy for 40 years, offers straightforward
information about symptoms, diagnosis, treatment, and coping with the
social, emotional, and legal issues. Although the book's section on medications
is somewhat dated, Utley's website (narcolepsybook.com) features updates
and links to other organizations and relevant sites. The author hopes
to publish a second edition in a year or so.
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From
The Sleep-e Times,
Spring 2003:
“Reading Marguerite’s
book is like sitting down in your favorite easy chair and having a chat
with a close friend. She doesn’t hold back and, with a touch of
humor, lets you into her life, explaining what it’s like to live
with narcolepsy.
Marguerite’s anecdotes
about the many lifestyle adjustments she was forced to make over the course
of 30 years—because of narcolepsy—make up the most powerful
portions of the book. …
…The author puts
into words things that are often difficult for narcoleptics to explain
to others who do not have the condition. …One of the plusses about
the book is that it is written in an easy-to-read style with medical terms
explained in simple English.
Narcolepsy: A Funny
Disorder That’s No Laughing Matter is a must-read by anyone
living with a narcoleptic, but can also be a boon for others, such as
extended family, friends, co-workers, and employers of narcoleptics, and
possibly people with other sleep disorders, including severe apnea.
Marguerite lets you know
you’re not alone in your struggles, and she provides simple, clear-cut
suggestions you can implement to improve your quality of life.
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From
a Book Review by Lynne Lamberg for
“Books for Sleepless Nights” (Dec. 1998)
View
whole Review
…Utley employs
humor as a coping strategy, giving her, she says, strength to cope with
an otherwise serious and disabling illness. Readers with narcolepsy, as
well as other chronic disorders, may profit from her unpretentious example.
…Utley includes
checklists for the symptoms and consequences of narcolepsy, and guides
readers through the diagnostic process. While she uses anecdotes from
her own life to particularize each topic, she is careful to point out
that others may have different experiences.
…[a] warm and sympathetic
book.
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From
a Book Review by Allan I. Pack, M. D., Ph.D., Professor of Medicine &
Psychiatry, Univ. of PA Medical Center, Philadelphia PA (1995)
Narcolepsy: A Funny
Disorder That’s No Laughing Matter is very well written. It
is highly informative for the lay public. It contains basic information
about sleep and its disorders as well as particular information about
the features of narcolepsy and its treatment. I would recommend that all
patients with narcolepsy read the book. Moreover, sleep professionals
–physicians, nurses, technologists—will benefit from the insights
into the disorder that Ms. Utley cogently provides.
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Comments
From Readers: |
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- I’ve read the entire book once and continue to read excerpts
from the book almost daily. I can’t tell you how many times I
just sat down as my eyes filled with tears of joy, relief, and many
other feelings as the floodgate completely opened…. In short,
you have unraveled 40 years of questions that no one has ever been able
to answer for me. You have shown me the pieces of the puzzle in my life.
- Thank you so much for writing your book… I sat and read it
from cover to cover—without dropping off.
- I just finished reading your book. It leaves me speechless and cataplectic…
You actually wrote about ME. Thank you! Thank you!
- Thank you, thank you, thank you! This book has been a God-send. It
has helped me so much and has aided my family in understanding, as much
as they can, what I am going through….
This book reminds me I am not alone, that there still are things I can
do to change my lifestyle , and how to help others to better understand
me and my illness. Finally, someone with the illness presenting a realistic
and fair picture of what it is like to struggle, live with and accept
having narcolepsy.
- I can honestly say that your book has given me more information, insight
and, most importantly, HOPE, than all the others put together.
- I have searched high and low for a comprehensive book on narcolepsy
and finally found one.
- My wife borrowed your book from the Inter-Library. She read it from
cover-to-cover, saying, “You need this book. Go buy it.”
- Thank you for writing your book, for all the information, and for
not making it sound like some dreadful disease, but just something that
we have, can manage, and can life with.
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